We finally saw her CF doctor, and he did a lung function test on her. Her lung function was down to 76%...this is not good...generally, her lung function (even having asthma & CF) has been 97-99%. He asked if I thought she should be in the hospital...well...seeing as Don was out of town that week, and not due back until the following night, I was hopeful we could either avoid a hospital stay or post pone it a bit. He gave her a new medication and we went home. Unfortunately, the next morning she was in considerable pain every time she inhaled, and had a fever (again). I got the other 3 kids off to school and called back the CF doctor. He told us to head over to the hospital and he'd have the admissions paperwork there for us. Thus began a 7-day stay at St. Joseph's Regional Medical Center in South Bend (yes, South Bend is where Notre Dame University is...for those sports fans out there).
Ariel's fever was 103.4 when she had her vitals done once we got to her room. She'd lost around 10 pounds in the course of the month (huh...and why couldn't I be the one losing those?), and she was dehydrated. In goes the IV...but, she was admitted on the pediatric unit as she's under 18, so she had the BEST nurses (ones used to 'sticking' small children and not letting it hurt much) for the 1st needle pokes of this stay! Thank Heavens for small miracles!
*Ariel's IV*
*A shot she took of some of the equipment in the room.*
Before we even got settled in, they had to move her to another room due to the high number of smaller kids who were being admitted. She ended up down the hall and around the corner from Peds...in the Oncology unit (that's cancer for you non-medical people). She was put in the only open room at that time...and it was a HUGE corner room! I mean, I've been in hotel rooms that were smaller than this room! There was a great recliner for me to sleep in, and a fold-out couch as a 2nd option (it was NOT comfy, nor long enough for me!). Well, I got someone to stay at the house until Don got there from after school time, and Don stopped by the hospital on his way home after his trip. I went home twice, Don visited 2 or 3 times, and Ariel's friend, Shawn (yeah, you kind of do see his name pop up frequently along side her name in our blog here) visited her 3 times. He was the only friend who was allowed to visit as he is the only friend she has who is over age 18, and the hospital wasn't allowing visitors under 18 due to the H1N1 flu problems. Can you say, 'Boring!'?
*Recliner I covered with a sheet and used for my bed*
Anyway, it took 2 or 3 days before Ariel started to feel better. We were so incredibly touched to find out that the Young Women in our Ward held a special fast for Ariel the Sunday after she was admitted (she went in on the 30th, and missed out on Halloween!). Coincidentally enough, it was Sunday that she began to take a turn for the better. When she was discharged, her lung function was about 94%, but it was good enough, and she'd been improving enough, that the doctor said she could go home.
She got to go home on the 1st day of the school play, but she did not attend that evening. It was kind of rough because she had a small speaking part in the school play before she went into the hospital. She missed a lot of practices, but the director was SO great about trying so hard to keep her in the play. It was very sweet of him. However, the hospital stay finally fixed it that she just wouldn't be able to do it. So, on the last night of the play (before she even went back to school), I took Ariel in to be with the cast (we took cookies for them too) before and during the performance. They were all SO sweet about welcoming her back and wishing her well!
It took a full week for Ariel to work up the stamina to stay for a full day of school, but she did a great job trying to get caught up on the work and back into the swing of things. Her attendance record, when she returned to school, was 56% attendance. I don't think she's missed a day since!
*Self-portrait in the hospital*
*Flowers from mom & dad and from Don's office*
Now that she has medications that were actually meant for Cystic Fibrosis patients, she's doing very well. I drive her to and from school simply to avoid the school bus atmosphere & germs. I can't imagine that the drivers have the time (nor desire, I know I wouldn't!) to disinfect the buses between every run, and kids come to/go home from school sick more often than I care to think about.
All is well now, and Ariel landed a supporting part (ok, chorus) in the Spring Musical!! I think they are a bit 'gun-shy' about giving her anything too big right now for fear she'll get sick over the winter. We're hoping we can prove that theory wrong so that she can take on more next year! Now...just to keep the rest of the house from getting sick and thus getting Ariel sick again! (as I type this, I'm listening to DJ coughing too much in his bed tonight...Clorox wipes anyone!?)





